We’ve been using “CGM in the cloud” for a few months now, and I wanted to give you an update of how our experience has been. The system was developed as a DIY tool (adopted at your own risk—there’s no tech support) to be used in connection with a continuous glucose monitor (CGM). It allows parents to upload the blood sugar data from the CGM with an uploader cell phone and view it from any device that can access the Internet—a computer, tablet, smart phone, or smart watch. As for the concept itself, I have to say that I absolutely love it! Here are a few examples of how helpful it has been to us:
- We’ve been able to see Kaitlyn’s blood sugar numbers while she’s at school! I can see her trends all day, and if I see that she’s trending low or high, I can call the nurse at school, and they’ll bring her in to give a quick correction or juice.
- Being out on a date with my husband is a breeze! We can leave Kaitlyn at home with a babysitter, and we don’t need to call every hour to find out what her number is. We can see the trends while we’re out and make a phone call if she goes out of range.
- When Kaitlyn is at track practice or doing any other physical activity, we don’t worry about whether her blood sugar might be crashing, because I can see her numbers “live” from where I’m sitting in the bleachers.
- Seeing her numbers with a simple glance at my wrist (from my smart watch) is amazing. It is so helpful for keeping her in range.
No doubt about it—I love it. However…this is the part I wish I didn’t have to write, because I want so badly for it to be a perfect solution all of the time. Unfortunately, for us, the CGM in the cloud system has been super glitch-y. The program is great…but only when it works.
It’s great when the uploader phone and CGM ports don’t wear out. It’s great when the wires don’t become worn and stop working. It’s great when you don’t have a problem with your data points and have to spend hours trying to figure out how to erase the bad data. It’s great when the smart watch app doesn’t crash. It’s great when the uploader phone, CGM, Wi-Fi, and smart watch are all charged and working properly.
Over the last few months, I have had problem after problem after problem. I have gone through two uploader phones and more cords than I care to even count, and I spent more money than I’d like to admit. I wanted it to work so badly that it became an obsession. I couldn’t sleep at night because I was so fixated on making it work.
I have nothing but the deepest respect, admiration, and gratitude for the amazing independent developers who made the system possible and who work tirelessly to keep people up and running on the social media group for CGM in the cloud. They have unselfishly provided so much good, and they have definitely given the device companies a push in the right direction! The bottom line, though, is that it might not be a great fit for a non-techie like me. I am excited to try out the app from Kaitlyn’s CGM maker, which will be very similar to the system we’re trying now—but I’m hoping for something a little more stable. Who knows—maybe the new app will have its own set of problems as well. I’ve heard there are pros and cons to both systems. I’m just excited to see what’s coming next. I hope they will work out the bugs and the technology will continue to improve!
Disclaimer: The experiences and suggestions recounted in these articles are not intended as medical advice, and they are not necessarily the “typical” experiences of families with a child who has type 1 diabetes. These situations are unique to the families depicted. Families should check with their healthcare professionals regarding the treatment of type 1 diabetes and the frequency of blood glucose monitoring. Jen and Kim are real moms of kids with type 1 diabetes and have been compensated for their contributions to this site.